First, on Tuesday, comes a regular quarterly visit with my GP.
The biggest change since my last visit involves pain in my hips & knees
when any pressure is applied (like changing chairs or getting into or out of bed).
I’ll also tell him that these “pain and stiffness”
episodes seem to coincide with my taking the anti-infection drug Cipro every
time my supra-pubic catheter is changed by the visiting nurse. I will also mention an overabundance of
saliva when not called for or expected.
And I’ll tell him
about my upcoming visit to a pulmonologist specializing in sleep disorders to
learn the results of my recent pulmonary function test to determine why I act out
during sleep and to assess my laryngeal stridor. After this battery of tests I should have
more information.
** This blog post was
typed by my daughter Debra who is visiting.
Hello Steve and Fran. I have spent the last hour reading all your posts. My dad was diagnosed with MSA in March. As of today, I would rate him a 4 out of 10. Thank you for documenting your journey. It has helped me to understand what my dad is going through now and in the days and years to come. May God bless you both.
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