If
you have spent your valuable time actually reading some of the many entries that
make up this blog, you’ve noted a theme that pops up every now and then. You may recall that I complain that I’ve had
to grudgingly rely on an increasingly complex number of appliances – just to carry
out my daily activities.
Back
so many years ago – it’s only been about 5 years – that MSA became a reality
for me, I’ve gone from nothing to a cane, to a walker, to a motorized scooter,
to a travel wheelchair, to a full-sized wheelchair, and now to the latest piece
of equipment.
Before
I write about this latest addition to my artificial mobility, I have to admit
that the last few items have been much easier for me to accept than the
first. The most difficult was actually
the first, the use of a cane. I guess
that’s because the cane was the first outward sign that MSA was for real and
that it was likely going to lead to its inevitable conclusion.
Now
that I’ve got you curious about what this latest addition could be – I am the
happy new owner of a slightly used, 2005 edition of a Pride “Jazzy Ultra” motorized
wheelchair which gets me around the house in no time – as long as I stop
hitting doors and walls. New, this chair
- which even comes with a cup holder – retailed for around $6000. Fortunately, I paid only a fraction of that
because it was gently used. I’ll get the
hang of driving it soon – until then, you better watch your toes when I’m
around.
I so enjoy dropping by your blog. On so many levels it inspires me: to be grateful for what is (versus what isn't), to make lemonade out of lemons, to see the humor in even tough things.
ReplyDeleteI'm thinking I might like one of those new contraptions myself, although I have no physical need for one. It would just drive my grandchildren wild to witness granny cutting rubber in the hallway (or on the walls).
Blessings,
Kathleen
P.S. You are roughly 4 years ahead of our beloved friend/pastor who also has MSA. Gradually he's losing ground but, like you, he has such a great attitude and hope.
Kathleen - Sometimes it's difficult to keep a "positive attitude," but then I remind myself about those people who are in worse shape then me and, believe it or not, I don't feel so bad.
ReplyDeleteAlso - I've convinced myself that this blog is actually helping some new sufferers better understand this awful disease.
Steve, I could not find your e-mail address, or even your family name, so, being irresponsible by nature, I rushed ahead and quoted some things you said, without your permission --- we have Parkinson's, not MSA, but so much of what you say applies to all the neuro-damaged - so I quote you in Chapter 49 of my never-ending book - half-way more more through the chapter:
ReplyDeletehttp://parkinsonsdance.blogspot.com/2005/07/chapter-49.html
Bob Dawson, Quebec Canada
Steve,
ReplyDeleteYour blogs are an inspiration to everyone. I can hardly wait for the next one. Your positive attitude should be a light for everyone. Keep up the fight. My prayers are with you.
Lee Reed
Lee – Always good to hear from you. Could you please do me a favor? My computer crashed and I lost most of my contacts with their e-mail addresses. Would you send me yours, Masino’s and anyone else you think I may need? You can use my home address ssteidel@comcast.net
DeleteThanks for your help!
I love what you guys are usually up too. This kind
ReplyDeleteof clever work and reporting! Keep up the terrific works guys I've added you guys to our blogroll.
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