Friday, November 30, 2012

Post 58 - Another Concession

If you have spent your valuable time actually reading some of the many entries that make up this blog, you’ve noted a theme that pops up every now and then.  You may recall that I complain that I’ve had to grudgingly rely on an increasingly complex number of appliances – just to carry out my daily activities. 

Back so many years ago – it’s only been about 5 years – that MSA became a reality for me, I’ve gone from nothing to a cane, to a walker, to a motorized scooter, to a travel wheelchair, to a full-sized wheelchair, and now to the latest piece of equipment. 

Before I write about this latest addition to my artificial mobility, I have to admit that the last few items have been much easier for me to accept than the first.  The most difficult was actually the first, the use of a cane.  I guess that’s because the cane was the first outward sign that MSA was for real and that it was likely going to lead to its inevitable conclusion. 

Now that I’ve got you curious about what this latest addition could be – I am the happy new owner of a slightly used, 2005 edition of a Pride “Jazzy Ultra” motorized wheelchair which gets me around the house in no time – as long as I stop hitting doors and walls.  New, this chair - which even comes with a cup holder – retailed for around $6000.  Fortunately, I paid only a fraction of that because it was gently used.  I’ll get the hang of driving it soon – until then, you better watch your toes when I’m around.


  1. I so enjoy dropping by your blog. On so many levels it inspires me: to be grateful for what is (versus what isn't), to make lemonade out of lemons, to see the humor in even tough things.

    I'm thinking I might like one of those new contraptions myself, although I have no physical need for one. It would just drive my grandchildren wild to witness granny cutting rubber in the hallway (or on the walls).


    P.S. You are roughly 4 years ahead of our beloved friend/pastor who also has MSA. Gradually he's losing ground but, like you, he has such a great attitude and hope.

  2. Kathleen - Sometimes it's difficult to keep a "positive attitude," but then I remind myself about those people who are in worse shape then me and, believe it or not, I don't feel so bad.

    Also - I've convinced myself that this blog is actually helping some new sufferers better understand this awful disease.

  3. Steve, I could not find your e-mail address, or even your family name, so, being irresponsible by nature, I rushed ahead and quoted some things you said, without your permission --- we have Parkinson's, not MSA, but so much of what you say applies to all the neuro-damaged - so I quote you in Chapter 49 of my never-ending book - half-way more more through the chapter:
    Bob Dawson, Quebec Canada

  4. Steve,
    Your blogs are an inspiration to everyone. I can hardly wait for the next one. Your positive attitude should be a light for everyone. Keep up the fight. My prayers are with you.
    Lee Reed

    1. Lee – Always good to hear from you. Could you please do me a favor? My computer crashed and I lost most of my contacts with their e-mail addresses. Would you send me yours, Masino’s and anyone else you think I may need? You can use my home address
      Thanks for your help!

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