Saturday, February 6, 2010

Post 20 - Twenty weeks after treatment

It’s February 6, 2010 – almost five-months since my stem cell therapy at the XCell Center.

Back when I started this blog in August of 2009, I hoped by now I’d be reporting a marked improvement in my overall condition. To be honest, I can’t make that definite of a claim. I can, however, report that my current MSA status has not worsened over these past months and, in fact, some small, positive steps have been observed. First, the urgency/frequency situation has improved – not as many visits to the restroom. And second, as I reported in a previous entry, my once weak and strained voice has returned to almost normal. Otherwise, everything is about the same.

Is it time yet to pronounce whether the stem cell therapy has been a success or a waste of time and money? No – not yet. I plan to wait the full six months (mid-March) before trying to sum it all up.

On another note, I was sorry to read Vic’s entry on the Shy-Drager Support Group website noting that his wife Wanda’s condition has deteriorated in the six months since her XCell treatment. I agree with Vic’s concern that XCell has not followed up or made any contact since the treatment. Aside from an electronic Christmas card – I haven’t heard from them either. By their silence, one is forced to conclude the overall, cumulative findings may not be favorable. Since they make a point of stating that any results may take up to six months to appear – there should definitely be a six-month status check with each patient.

More in a couple of weeks.

3 comments:

  1. Thanks for the mention Steve. I wish I could have posted something better but I feel that we need real hope not false hope. All the best to you and Fran. Keep feeling positive - it might be working for you.
    Best wishes Vic

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  2. God bless you and I am keeping you in my collective prayers. I hope you get better from this even if slightly so.

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  3. Department of Neurology, Ajou University College of Medicine, Suwon, South Korea:

    Autologous mesenchymal stem cell therapy delays the progression of neurological deficits in patients with multiple system atrophy.

    http://www.ncbi.nlm.nih.gov/pubmed/17898702?itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum&ordinalpos=3

    ReplyDelete