Sunday, January 12, 2014

Post 73 - Finally!

After weeks of waiting, I finally have taken possession of a sleep machine; specifically called a BiPA autoSV Advanced System One by Philips or, as it’s more commonly known, a new version of a BiPAP machine which blows a steady stream of air into the sleeping victim, er, I mean patient. The delay, I have since learned was due to the senior doctor taking an abrupt leave of absence, the closing of one of two offices, the re-organization of the remaining three doctors into a new group, and the failure of my doctor to completely fill out my correct machine orders. And the Holidays. Other than that, no problem!

Wait – there is one slight problem. Do they really expect you to sleep soundly with both a chinstrap to keep your mouth closed and a bunch of straps to hold the mask in place? Looks like I’ll need another visit from the talkative technician to show me how to make this thing work as intended.


  1. Steve and Fran, my name is Kay and my husband Bob has been diagnosed with MSA. Is there any way I could connect with Fran concerning being a caregiver? I've enjoyed reading your blogs and learning somewhat more of what to expect alhough we've gone thru some of the things you have. Thanks for doing the blog!!!

  2. Hi Steve. I just ran into your blog and am captivated by your journey with MSA. If you could, please email me at mtrucillo(at)recallcenter(dot)com. Thanks!

  3. I love dropping by to see how you two are doing. It helps me understand better what's likely to come next for my friend Greg. He's almost 4 years into his M.S.A. diagnosis. I also marvel at your tenacity & good humor.

    Hoping you get a lot of sleep with the new device.