Sunday, January 12, 2014

Post 73 - Finally!

After weeks of waiting, I finally have taken possession of a sleep machine; specifically called a BiPA autoSV Advanced System One by Philips or, as it’s more commonly known, a new version of a BiPAP machine which blows a steady stream of air into the sleeping victim, er, I mean patient. The delay, I have since learned was due to the senior doctor taking an abrupt leave of absence, the closing of one of two offices, the re-organization of the remaining three doctors into a new group, and the failure of my doctor to completely fill out my correct machine orders. And the Holidays. Other than that, no problem!

 
Wait – there is one slight problem. Do they really expect you to sleep soundly with both a chinstrap to keep your mouth closed and a bunch of straps to hold the mask in place? Looks like I’ll need another visit from the talkative technician to show me how to make this thing work as intended.

3 comments:

  1. Steve and Fran, my name is Kay and my husband Bob has been diagnosed with MSA. Is there any way I could connect with Fran concerning being a caregiver? I've enjoyed reading your blogs and learning somewhat more of what to expect alhough we've gone thru some of the things you have. Thanks for doing the blog!!!

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  2. Hi Steve. I just ran into your blog and am captivated by your journey with MSA. If you could, please email me at mtrucillo(at)recallcenter(dot)com. Thanks!

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  3. I love dropping by to see how you two are doing. It helps me understand better what's likely to come next for my friend Greg. He's almost 4 years into his M.S.A. diagnosis. I also marvel at your tenacity & good humor.

    Hoping you get a lot of sleep with the new device.

    Blessings,
    Kathleen

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