After weeks of waiting, I finally have taken possession
of a sleep machine; specifically called a BiPA autoSV Advanced System One by
Philips or, as it’s more commonly known, a new version of a BiPAP machine which
blows a steady stream of air into the sleeping victim, er, I mean patient. The
delay, I have since learned was due to the senior doctor taking an abrupt leave
of absence, the closing of one of two offices, the re-organization of the
remaining three doctors into a new group, and the failure of my doctor to
completely fill out my correct machine orders. And the Holidays. Other than
that, no problem!
Steve and Fran, my name is Kay and my husband Bob has been diagnosed with MSA. Is there any way I could connect with Fran concerning being a caregiver? I've enjoyed reading your blogs and learning somewhat more of what to expect alhough we've gone thru some of the things you have. Thanks for doing the blog!!!
ReplyDeleteHi Steve. I just ran into your blog and am captivated by your journey with MSA. If you could, please email me at mtrucillo(at)recallcenter(dot)com. Thanks!
ReplyDeleteI love dropping by to see how you two are doing. It helps me understand better what's likely to come next for my friend Greg. He's almost 4 years into his M.S.A. diagnosis. I also marvel at your tenacity & good humor.
ReplyDeleteHoping you get a lot of sleep with the new device.
Blessings,
Kathleen