When I started this humble
blog in August of 2009, I weighed somewhere around 150 pounds, the same weight
I carried for many years, especially since replacing my highly caloric lunches
with a cup of yogurt and an apple. Of course, I was always on the go somewhere,
in particular since landing a training consultant’s job which involved lots of
travel and prep work.
At the beginning of 2012,
after about five years or more of dealing with the effects of this damned
disease, I noticed a continual weight gain until today I tip the scales at a
robust 175 pounds, the heaviest I’ve ever been.
Some of this excessive
poundage I can attribute to a loss of mobility which has caused me to spend
more of my time in a wheelchair BUT, when the gain began to worry me, about 10
pounds ago, I watched my diet more closely and found that my intake was still
quite moderate. Fran, my resident
nutritionist, who, while using the techniques of Weight Watchers, has shed
about 25-30 pounds, which is suspiciously exactly what I’ve gained, can attest
to my portion control and other dietary restraints. Yet, still I keep on gaining!
My “girth enhancement” is
becoming more problematic in a number of ways. First, Financial – Fran has
bought me a bunch of “big boy” clothes based around size 36 pants and XL tee
shirts to accommodate my increasing waist size and expanding pot belly. Second, Physical – extra pounds, in
particular around the middle, are very uncomfortable, especially when trying to
get comfortable in a wheelchair or other piece of standard furniture – the “’belly”
always seems in the way. And third, Psychological – simply put, I dislike this
extra weight, don’t like how it looks, and am anxious to lose it.
I took a look at the
side-effects of the medications I’m taking and found that one, Florinef, (fludrocortisone)
which is prescribed for low blood pressure, helps raise one’s pressure thru the
retention of salt and water – in fact, some people mention the Florinef ”fluff”
which describes unwanted weight gain.
I’ll discuss this with my GP, but I already know what he’ll say. “You’ll need the extra pounds in case you’re
hospitalized from a fall or with aspiration pneumonia and are likely to lose
weight.” A big help, he is.
So maybe I’m stuck with these
extra 25-30 pounds or maybe I can shed some or all of them. I’ll keep you posted. If any other MSA’ers
would like to comment, I’d appreciate hearing from you – either comment here or
e-mail me privately at ssteidel@comcast.net
My heart goes out to you and your wife ..my sister Marlene has MSA she is so young 62 and was a go getter.and still trying ..loved to dance she was in a trial study and got a call from her Dr. this week to stop taking the drug because it is not working.i can't imagine how all those who were in the study felt...my heart hurts so bad that they can slow down aides but can't help w/this...MAY GOD KEEP YOU STRONG AND GIVE YOU COURAGE....Terry
ReplyDeleteTerry - One of the worst things about this disease is how it turns active,energetic people - like your sister - into people who can just barely stand up. Let' hope they find the answer to MSA soon! Best of luck to Marlene.
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