The Diagnosis

Hi, this is Steve’s daughter Deb writing.  

It was very important to my dad to donate his brain for research.  He also wanted us to have a definitive diagnosis – MSA is not typically hereditary, unlike some very similar diseases.  He would have been relieved to know that the brain autopsy results indicated a definite diagnosis of MSA.

Here is the statement we received from the University of Miami Brain Endowment Bank:

The section shows dense a-synuclein-positive glial cytoplasmic inclusions (GCIs) throughout in the putamen, brainstem, and cerebellum with lesser amounts in the caudate nucleus and thalamus.  Rare a-synuclein-positive neuronal inclusions and scattered a-synuclein-positive processes were observed.  Gliosis was most evident in regions with abundant GCIs.  The clinical history together with the widespread a-synuclein-positive warrants a definite neuropathological diagnosis of multiple system atrophy.  

A little bit of googling tells us that this is typical for MSA – basically, a specific type of lesion throughout certain parts of the brain.

We are glad to have the diagnosis, but there’s a certain finality to it that is saddening to us.  My mom is doing well, but we all miss my dad every single day.

My dad worked so hard on this blog - it was a way for him to deal with what was happening to him, and to share his experiences so that other people with this disease might benefit.

It’s unlikely that we will add more entries to this blog, but will keep it alive in the hope that it will help other people who are facing MSA.

The very best to all of you.

Post 78 - STEVE STEIDEL 1944-2014

I'm so sad.  We lost Steve on June 28.
 
He was doing ok.   We were managing all his symptoms and problems. 
We quietly celebrated our 49th anniversary on June 12.
Then, the following week he started with a low fever.  It climbed to 102.8 even though he was being given a strong antibiotic through an IV. 
Our family doctor sent his nurse practitioner every day.  One day she came 4 times. She was so caring and compassionate.

Steve gradually got worse. He could no longer move his limbs but his eyes stayed on me all the time.  The worse for me was that he could not communicate. We tried everything but his brain wouldn't let him blink his answers and he could no longer squeeze my hand.  He managed a big smile when our two daughters came. We stayed by him around the clock.  He knew what was happening, he could hear and understand until the very end.
After a week of this the nurse practitioner brought in Hospice.  What a wonderful organization.  His lungs then began to fill up and his larynx was closing. The end was near.  The girls and I whispered our love to him and hopefully he left this earth without pain.

I have been inundated with beautiful notes from so many people.  I realize how many lives he has impacted.
I also realized that the hospice nurses are more informed about MSA than most doctors, especially the ones in the ER. 

Steve put so much of himself into writing this journal, especially in the beginning when he wanted to get the word out.  I have tried my best to keep it going for him.  This will be the first post that he is not "editing". 
Will I continue the posts?  I do not know but I will let you know the results of the brain donation.  I understand it takes months before they contact you.

I am including the link to his obituary and a slide show for those that did not know him personally but faithfully followed his blog.

http://www.kays-ponger.com/obits/obituaries.php/obitID/755589/obit/Stephen-E-Steidel

http://youtu.be/BcKlu-pVPH8

Thank you, everyone for your support.

Fran Steidel

Post 77 - New Month, New Message

I'm glad to say that things are going along pretty well.

I am irrigating Steve's catheter every morning and that seems to be keeping the sediment buildup in check.
Steve has finally acclimated to the bi-pap machine and we only need to adjust it once or twice a night because it moves and causes an air leak.  When there is a leak the noises it makes sounds like Steve is a one man band.  It's entertainment while we sleep.

Caregiving is a full time job that is both exhausting and physical and we are concerned about the toll it is taking on me. Steve had a regular doctor's appointment this month and the doctor saw the progression in Steve and also how hard it is for me to manage him physically. Therefore he contacted hospice and arranged for a house visit.
Although Steve's disease has progressed he did not qualify for hospice yet. I guess I should be happy but I guess I was hoping for some help. The hospice organization is wonderful.  We are now in "Transition Hospice" which means a volunteer will come and stay with Steve for 4 hours a week to allow me some respite.  The only problem is that most of the volunteers are snow birds and they have flown the coop.  We are hoping that they will recruit some nice, new folks and we can start the program soon.
Meanwhile I have contracted with a home health agency to come in several mornings a week to help with Steve's personal needs.  That starts tomorrow.

In several months Hospice will evaluate him again.  The criteria they look at is weight loss,  loss of appetite, bed sores, pain and several other things.
So, yes, I am happy that Steve has not reached that stage.

We are looking forward to an uneventful summer.  We have learned to accept the hot and humid days of Florida.  Hopefully there will not be any hurricanes anywhere nearby.
Both girls and our granddaughter will be visiting soon so that will definitely brighten our days.

Fran

Post 76 - Ouch! Ouch! Ouch!

Ouch! Ouch! Ouch!

When things get ironed out on one end something else gets wrinkled on the other.

Several new happenings this month.
First the bi-pap machine.  It was back to it's old self with dozens of alarms throughout the night.  These are alerting us to Apnea episodes.  Steve finally decided to have them disarmed.  This took a summit meeting between doctor, technician and the medical supply company.  Finally all agreed that Steve would need to sign an affidavit taking full responsibility for this decision. OK, done deal and what a difference it made. We BOTH now have a restful sleep.

Second the catheter change.  The nurse comes every three weeks to do this. About 4 months ago the doctor changed the type of catheter from latex to silicone to see if it would help with the sediment buildup.  It did but it caused another problem.  The silicone has a tendency to adhere to the inside wall of the bladder.   The nurses have been having a hard time getting it out.  Last time it really hurt him and there was blood in his urine for several days.  This time the nurse tried but decided not to yank it out like last time.  A trip to the urologist was in order to solve the problem.  But his nurse could't do it either.  So now the doctor was going to take charge.  Steve and I both thought he would deaden the area or inject some novacaine.  Not to be.  Doctor walked in, took hold of the catherer and yanked it out.  I guess it's like removing a bandaid, the faster you do it, the less pain you feel.
Of course Steve does not agree with that analogy.

Things  are now fine.  We are back to using the latex catheter but now I am irrigating Steve every morning to try and keep the sediment in check.
Hopefully next month will be uneventful.

Happy Easter
Fran

Post 75 - Odds and Ends (no pun intended)

It has been a while, so I (Fran) thought I would let everyone know that the Bi-Pap machine is doing it's job.  The technician decided we needed a new machine. It took a while for the supply company, technician, and doctor to get on the same page but finally tweaking some numbers solved the problems.  I think it took so long because I was trying to be nice and not my usual impatient self. Well sometimes vinegar works better than sugar.  Yes, the alarm still goes off but only several times a night. Steve is getting a restful sleep and wakes up refreshed.  He will be trying a new full face mask in April because the smaller mask irritates the bridge of his nose.
For those who asked, the machine itself is whisper soft. If you use an older machine and it is noisy,  get yourself a newer model.

Life never stays uneventful for long.  For several days Steve complained of an odd sensation on one side of his buttocks. He was worried he was developing a bed sore.

So what did it turn out to be......SHINGLES!  On day 3 I could see the signs of small blisters in a linear pattern.  We went immediately to the doctor.  Funny thing is that Steve had the shingles vaccination three years ago.  We are finding out that it is only 67% effective.  Between the vaccination and the prompt dosing of an anti viral drug he has a mild case.  Thank goodness. Hopefully it will be all cleared up by our next posting.

Some good news is that the FDA has finally approved the drug droxidopa.  This drug has been used successfully in Japan for decades for orthostatic hypotension.
People with OH have a sudden severe drop of  blood pressure when they stand up, causing dizziness and sometimes fainting. It will be available in 6 months.  We will see our GP about this.  If he does not agree to prescribe and monitor it then we will  have to deal with our neurologist. We will keep you posted.

We hope you are all seeing some signs of Sping wherever you may be.

Fran and Steve.

Post 74 - A Note from Fran

Several of our friends have been inquiring as to how Steve is doing with his new Bi-Pap machine. I've decided to post an entry to let you know about our trials and tribulations with this BOX.
Eventually it's going to be good, but until then, it has been frustrating and I am completely sleep deprived.  The machine has a modem and SIM card so that the doctor and Medicare can read the results. The doctor wants to make sure it is working and Medicare wants to make sure that Steve really needs this expensive gadget.  According to the technician that has come to the house twice now, this high tech machine is learning Steve's sleeping and breathing patterns ???? 

Steve has obstructive apnea and also the more dangerous type called Central Apnea.  The brain of an MSA patient neglects to tell the lungs to push air out to start breathing when sleeping.  This machine is suppose to "read" this and push a bigger burst of air out of his lungs. ( I think, or at least this is what I understand). This very smart machine has an alarm to warn you that you are having an apnea episode.  The technician neglected to tell us about this alarm.  The first night when this alarm sounded I jumped out of bed thinking the condo fire alarm went off. It then proceeded to go off another dozen times that night and every night thereafter.  Steve has learned to reach over and silence it. If he doesn't then I get up and gently wake him.  BUT remember this machine has it's own brain and agenda.  It only stays quiet for 90 seconds and then automatically re-activates itself.

I will regress to tell you we go to bed earlier because it takes time to get the straps, mask and tubing attached and plugged in correctly.  There is a small humidifier inside this box that gets filled with distilled water every night. Every morning the mask, tubing and filter has to be washed and dried.

I hope this does not sound as if I am complaining because nothing is further from the truth.  I am thankful that all these medical advances are available to us.

Steve is still in good spirits but he is getting more tired and exhausted with time. Our Christmas was delightful with our children here  but it took a toll on him.  He has not wanted to go out to a restaurant now for over a month.

Hopefully he will be in good form soon and write the next post himself.

Post 73 - Finally!

After weeks of waiting, I finally have taken possession of a sleep machine; specifically called a BiPA autoSV Advanced System One by Philips or, as it’s more commonly known, a new version of a BiPAP machine which blows a steady stream of air into the sleeping victim, er, I mean patient. The delay, I have since learned was due to the senior doctor taking an abrupt leave of absence, the closing of one of two offices, the re-organization of the remaining three doctors into a new group, and the failure of my doctor to completely fill out my correct machine orders. And the Holidays. Other than that, no problem!

 

Wait – there is one slight problem. Do they really expect you to sleep soundly with both a chinstrap to keep your mouth closed and a bunch of straps to hold the mask in place? Looks like I’ll need another visit from the talkative technician to show me how to make this thing work as intended.

Post 72 - The Results Are In.

My sleep study follow-up was yesterday and even though I have been told by my sleep partner that I probably have sleep apnea, I didn't expect the doctor to say "severe OSA" which stands for Obstructive Sleep Apnea. He proceeded to add Central Apnea, Sleep related Hypoxia and Restless Legs Syndrome to the diagnosis.

I won't bore you with the numbers but let me assure you that I am not thrilled. But maybe it is best to know so that we can now deal with a c-pap type machine at night..

Central Apnea is the main concern because breathing is disrupted regularly during sleep because of the way the brain functions. It is not that you cannot breathe (which is true in obstructive sleep apnea); rather, you do not try to breathe at all. The brain does not tell your muscles to breathe. This type of sleep apnea is usually associated with neurological diseases, such as Parkinson's disease, Alzheimer's disease, and  ALS ( Lou Gehrig's disease) and as we can see, MSA.

In very simplistic terms, Hypoxia is not enough oxygen getting to the brain causing confusion. Having only 84 % is cause for concern!

Our next step is an overnighter on November 28th.  This time the technician will be trying out several types of machines and calibrating them to my exact need all while I am suppose to sleep.

Wish me luck.  There definitely will be more to come.

Post 71 - The End Of A Busy Week

As mentioned in Blog entry #68, this week was chock-full of doctor visits, catheter changes, and assorted tests.  Everything was going along predictably until Wednesday night when the Sleep Study was held.

First, a little bit of history; the Sleep Study was ordered by my latest physician, a pulmonologist, whose technician performed what turned-out to be a normal Lung Function test a few days earlier. 

Next, the only test remaining which might determine the course of treatment for those nights when I act out or make strange noises is the innocent-sounding Sleep Study.

I appeared exactly as directed at 8:30 PM at the testing site, which happened to be at the rear of the doctor’s exam complex. The room looked reasonably comfortable.  Fran, my wife, caretaker and chauffer, accompanied me as well, in case my suprapubic catheter, or me, in general, needed attention. She got to sleep in a recliner while I, the subject, slept, or tried to sleep in a Murphy Bed-like set up.

We were met by a helpful technician who immediately hooked me up to twenty-four EKG-like sensors from the bottom of my legs to the top of my head and then tells me to “go to sleep.” It reminded me of a trip to the dentist where your mouth gets stuffed with about ten tubes and the dentist wants to carry on a conversation.  How does he expect me to fall asleep all wired up like this?

Both of us must have eventually fallen asleep because the technician sticks his head in the door to announce its six o’clock and time to get up.  He then proceeds to remove the twenty-four sensors, leaving behind some adhesive as a souvenir of my visit.

          It was too early for our regular breakfast spot, so we found someplace open instead.  Turns out they make pancakes the size of Frisbees.  What a strange experience!  Now I‘ll have to wait until Nov 20^th for the results.

 

Post 70 - Isn't This A Pain In The #%&*

First, let me apologize to the many nice people who have left messages or comments in the past few weeks.  Please do not think I have ignored you. Very much to the contrary, I open and read all comments.  Just when I had it figured out, Google went and changed a few things on their blog page (for my convenience).  I think I finally have these new changes figured out but I can always be reached at ssteidel@comcast.net

Now for the matter at hand; aside from the usual aches and pains of growing older (I’m speaking about arthritis which flares up every morning but can usually be massaged or medicated away by noon), I feel fortunate in never having to bore my readers with comments about MSA related pain. Fortunate because until about three weeks ago there was no pain associated with my symptoms.  Plenty of other things were wrong, like loss of balance or speech – but no pain.  I used to be able to say that – but no longer.

A few weeks ago, I developed an annoying pain on the inside of my knees, mostly the

right one but occasionally the left one as well.  The pain is at it’s worse when I am

transferring from one chair to another.  On those occasions my hips decide to join in and

hurt as well.  I am also experiencing these pains and sensations when in bed.

I only hope it doesn’t progress any further.

Post 69 – It’s Gonna Be a Busy Couple of Weeks

Most weeks go by with nothing going on. Time to sit around and read or to catch up on messages from good friends who genuinely care about my condition.  These coming weeks, however, promise to be anything but routine and quiet.

First, on Tuesday, comes a regular quarterly visit with my GP. The biggest change since my last visit involves pain in my hips & knees when any pressure is applied (like changing chairs or getting into or out of bed).  I’ll also tell him that these “pain and stiffness” episodes seem to coincide with my taking the anti-infection drug Cipro every time my supra-pubic catheter is changed by the visiting nurse.   I will also mention an overabundance of saliva when not called for or expected.

 And I’ll tell him about my upcoming visit to a pulmonologist specializing in sleep disorders to learn the results of my recent pulmonary function test to determine why I act out during sleep and to assess my laryngeal stridor.  After this battery of tests I should have more information.

** This blog post was typed by my daughter Debra who is visiting.

Post 68 - My Turn

I guess it's my turn to write. 

Steve is ok.  It's just that it takes him so long to type that he gives up.  He has emailed several friends this past week. Short notes that took him the better part of the day.

We have had several new developments.
We finally were able to get a hospital bed.  Medicare is strict especially when you have an honest doctor.  The bed is not for the convenience of the caregiver but for the need of the patient. 

The other development is what qualifies him to get the bed. 
In the later stages of MSA a problem develops with breathing while sleeping. It is called Nocturnal Laryngeal Stridor.

What is happening is that his larynx cannot close and open correctly
(partial paralysis) and the air gets trapped going in with a wheezing sound and then bursts out with a graspy sound. Seems that it is a common occurrence with MSA.  Soooo, nighttime is not fun.  The second I hear him start making an odd noise I wake him up.  This happens about 5 times a night. Oddly, there are some nights that it doesn't happen at all.

We are waiting for a scheduling of a sleep study to be done at the hospital.  The doctor prefers this than a sleep clinic because of Steve's medical issues.

His supra pubic catheter is working out very well.  A nurse comes to change it every 3 weeks rather than 4 because for some reason his bladder makes tons of grit that clogs the tube.

Bowel issues: Let's not go there.  I give him prunes and juice, miralax, docolax,  liters of water, fruits and veggies, and still he has a hard time.  His brain may send the message but his body is not receiving it.

It's kinda like when I talk and he doesn't listen.  Chuckle!

Post 67 – What Next?

By now you’re probably sick of hearing about the trials and tribulations I’ve experienced while adjusting to my supra-pubic catheter which was surgically implanted on May 10^th  Just one more cautionary tale – one about something I didn’t see coming!

 Each week I have a visiting nurse stop by to check my vital signs and inspect the operation site.  Her job, on a monthly basis, is to remove the old catheter and replace it with a new one (a simple task that takes about 10 minutes).   The first time she made the change was about 60 days after the operation.  Actually, the very first time the catheter was changed was by the urologist’s nurse in the doctor’s office around 30 days after the procedure.   So, after 2 different nurses had no problem changing the catheter, I assumed every change would take place without a problem.  Little did I know!

Now it’s early on a Monday morning and the visiting nurse isn’t due until Friday to change the catheter.  I‘ve awakened early each of the prior 3 nights with a feeling of fullness (almost pain) in my bladder area.  On each of those 3 nights I could only get relief when I moved to a recliner and changed my position.

My wife, Fran, called the visiting nurse service later that morning and explained

my predicament.  Shortly afterward, the nurse called and confirmed she would

come over as soon as possible.  When the nurse arrived she changed the catheter and I immediately got relief.  It turned out that the old catheter was full of a grit- like substance that clogged the diameter of the tube therefore not allowing the urine to flow.

Hopefully, each month will not bring a new adventure of this type. 

I will keep you informed.

 

                                                                                                                               

Post 66 - Boy, Is My Face Red!

In a prior post on this blog, Fran explained some of my urinary problems and mentioned how I had decided to have a supra pubic catheter installed.   For the benefit of those people who may not know, a supra pubic catheter procedure involves making a small incision just below the belly-button into which is run a  catheter that takes the liquid waste into a leg bag or, depending on the hour, into  a night bag hung on the side of the bed. Now that I sleep uninterrupted through the night I’m sorry I didn’t have the procedure done sooner.  There are a few minor inconveniences associated with the aftermath of having this type of catheter – one of which I ignored – and one which caused me great embarrassment!

A small pleasure I look forward to each month is when a few guys get together for a couple of hours to eat lunch, shoot the breeze, and play darts at a local pub (I don’t actually shoot darts – which could be very dangerous – I keep score, which keeps me safely behind the shooter’s area, either propped against or holding on to a counter-height table).  

 On this particular day, our group of R.O.M.E.O.s (Retired Older Men Eating Out) consisted of Ray (who usually drives me and pushes my wheelchair) Charlie, Allen, and Rob.  The only ROMERO missing was Dave who was off camping.  We had finished our lunch and were in the dart-throwing area already on our second game when disaster struck!  I was wearing new shorts which Fran had recently bought to cover the leg bag, which on this day was strapped to my right thigh.  The only problem is when you buy over-size shorts and you wear them before taking them in so the waist holds them up.

You can guess what happened next.  We were halfway through the second game, it was close, and I was intent on keeping score.  Perhaps because I was concentrating on the game, I failed to notice that my shorts were falling and were almost to the bottom.   If I tried to pull them up I’d probably end up on the floor – so I let them fall.

Now I know that Ray and Rob are good friends – they both helped me pull up my fallen shorts.  Anyway, the other people in the pub probably didn’t know or care what was going on at Dartboard #6 but if anyone was offended – my sincere apologies.

Post 65 - A Message From Fran

For those who don't know me, I'm Fran, Steve's wife..   I told Steve I would help him type his messages if he dictated.  I didn't think I would be writing my own message for his blog.

A lot has happened since his supra pubic catheter was inserted on May 10, which by the way is a lot easier to deal with than constant self catherization.

Two days after he was home from the hospital he developed a severe fecal impaction.  I won't go into details.  He may in the future.  That wiped him out, literally and physically.  Now,  a week later he developed a fever and UTI.  The high fever has rendered him incapable of picking himself up from the bed or chair, even with my help.  He cannot keep himself upright and tilts to the side making it dangerous to be in a chair. 

 I think we are at a crossroads.  I can hope that when his fever subsides his strength will return, but I have my doubts.  

A nurse and an aide  are coming today.  I'm hoping they will evaluate the situation and give this information to our doctor.  I will be speaking with him next week to see what our next step is.  

I have realized that I no longer have the strength or ability to help Steve properly and I don't want to see him fall on my account.  Whether this means a hospital bed and more home health care I don't know. We will see.  

Meanwhile we will be celebrating our 48th anniversary on June 12th.  If we can't go out to a nice restaurant, I will just bring something in and enjoy our day together.

Post 64 - Part One and Part Two

This is Part One of what is intended to be a two-part post describing the lead-up (part one) and part two – the actual procedure , which will result in the placement of a supra pubic catheter in the abdominal area of yours truly. 

The decision to go ahead with this placement was really an easy one after trying and failing to get the hoped – for relief from self-catheterization. My urologist, who will perform the procedure, agrees that a supra pubic catheter is the only related procedure that we haven’t yet tried. 

My biggest concern isn’t the procedure itself, which simply involves a small hole in the abdominal wall and bladder into which a long-term catheter is placed.  My biggest concern is the anesthesia which may have lasting effects on someone with MSA.  Fortunately, Fran and I were able to speak with the anesthesiologist a few days beforehand and were able to tell him of our concern.

 

We are confident that everyone is “on the same page” for tomorrow’s surgery.  Now if I could only get them to change the start time of tomorrow’s surgery – 5:30AM – isn’t that a terrible hour?  I’ll report back to you either later Friday or Saturday.

Part Two
It’s about 4PM on the day of the procedure and yours truly has just awakened from a several hour nap.  The nap was necessary because I was awake at 4AM this morning to prepare for the placement of a supra pubic catheter. 

This procedure, which was to be performed by my urologist at Fawcett Memorial Hospital in Port Charlotte, FL, required that I use a special liquid soap to get ready for the 7AM operation.  At the hospital I had another discussion with the anesthesiologist that only a minimum of anesthesia would be used.  A few minutes later, the urologist was in and made sure I had talked with everyone involved in this procedure. 

It must have been a fairly simple procedure - I was back in the Recovery room in 1 hour and reunited with Fran in about 1hr 30mins.  I was on my way home  by about 10:30AM.  All in all – not a bad day!

Note: It's 8AM "the morning after", Sat, May 11th,and for the first time in months, I've slept the night thru. This morning, Fran changed the night bag for the smaller, day-version .  Right now the supra pubic catheter seems like the best available option for someone in my situation.
 

Post 63 - That's All Folks (sort of)

This blog, which began in August of 2009 when I decided to chronicle my trip to Germany for what turned out to be unsuccessful stem cell treatment, will semi-conclude with this post, #63.  Semi-conclude, not completely conclude because I still wish to occasionally speak about MSA; how it affects me and some experiences that might make life more bearable for my fellow MSA sufferers.

I’m semi-concluding this blog for the simplest of reasons; my fingers just don’t hit the keys I aim at.

By the time I correct the misspellings in my latest entry and the time it takes to complete and post an entry, a couple of hours have gone by, hours that have become more precious as each day passes.

Fran, my long-suffering wife and caregiver, has just graciously offered to type up my wandering thoughts in the future.   She types much better than I ever did so we should be in for an improvement.  Until next time  .  .   .

Post 62 - Just Another Accomodation

I‘ve mentioned several times before  how MSA involves adapting to a series of physical conditions such as conditions affecting balance which require first a cane or walker, later a wheelchair, so people don’t think you’ve had too much to drink.  Another condition I’m dealing with now involves the loss of my voice and what to do when I want to add something and be understood.  Just when I thought  had encountered all the annoying conditions MSA had to offer, a brand new one pops up.

This time the issue or annoying condition I’m experiencing involves drooling or, as someone more refined might say, having an excess of saliva when it’s not needed.  Actually, these discharges don’t just emit from my mouth, but my nose, taking a difficult situation and making it extremely troublesome. Imagine having a spoonful of water placed in your mouth with every forkful of food.  You can swallow or remove the excess with your napkin.  Or, you’d like to add something to the conversation but first you’ve got to deal with this water in your mouth.  So what do you do?

 First, you go shyderager@yahoogroups.com (the MSA Support blog) to find out if others have encountered this phenomenon and how they dealt with it. You find it’s just another strange condition sometime experienced by those approaching advanced stages of MSA.  You also learn that there’s no treatment for this annoying condition. Lastly, you find the only thing you can do is to prepare for this dinner time visitor – and ask for extra napkins!

Post 61 - Where do the Months Go?

I must apologize to readers of this blog for the delay between postings. I try to post at least every thirty days but I realized today that I haven't posted since January19th.

In my defense, my mind may have been somewhat preoccupied by the fact that I've been fighting a UTI during the entire month of of February. For the uninformed, a UTI is short for urinary track infection, a condition many MSA'ers are familiar with.

I think I've whipped this bout of infection, through lots of juice and a prescription for the antibiotic, Cipro,

Finally, I've learned the most likely way I contacted this infection was less than spotlessness at the catheter site. Lesson Learned: Germs are ubiquitous. Scrub up thoroughly even if you don't think its necessary.

Post 60 - Who Moved That Wall

Those of you who read Post 58 or, “Another Concession,” learned of my purchase of a
Jazzy ”Ultra” motorized wheelchair to take the place of my regular chair.  This power
chair was intended to make it easier to get around the  condo. 

I should have waited a few days before posting my final comments – in order to describe

how that intention actually worked out. With 5 forward speeds you’d think I’d get from
one end of the condo to the other, in no time at all.

The problem wasn’t speed. It seems that things kept getting in my way – like walls,

doorframes, and even a pesky piece of base molding I kept running into. I couldn’t figure it
out – the chair had become more of a battering ram – damaging everything it
encountered.

It finally became clear what was causing the problem;  I’ve lost most of my sense of

depth perception which makes things seem closer or further away than they really are. 

Since there’s no improvement in sight, you’ll soon see a “For Sale” notice on Craig’s List or our

local Classified –before I knock down the condo!