tag:blogger.com,1999:blog-6716628091774971998.post5563393773344942616..comments2024-02-05T00:54:03.240-05:00Comments on My MSA Journey: Post 26 – Concluding My “Noble Experiment”Anonymoushttp://www.blogger.com/profile/18191886332489878636noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-6716628091774971998.post-49030085518032712112013-01-01T12:54:18.027-05:002013-01-01T12:54:18.027-05:00Hi! My name is Donna Sellers! I am 50 years old &a...Hi! My name is Donna Sellers! I am 50 years old & have had MSA for 10 years! Thank you for this blog! My main problems are speech which is very slurred, blood pressure, fine motor skills,gsit and bladder issues! I do think positive attitude, prayers and staying active certainly helps me to cope with this disease! If you ever want to email me my address is sevensellers@aol.com! I appreciate you allowing others into your life!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6716628091774971998.post-14800572786446025392011-01-09T21:14:26.991-05:002011-01-09T21:14:26.991-05:00Hi! My name is Eli Perez. My wife is afflicted wit...Hi! My name is Eli Perez. My wife is afflicted with the same condition. We are in our early 60's and are working together to win against this scourge. Would you consider a partner to your journey? By the way, thanks for educating whoever cares to learn from your blog.<br /><br />God Bless.Anonymoushttps://www.blogger.com/profile/04426766847003963110noreply@blogger.comtag:blogger.com,1999:blog-6716628091774971998.post-58678700954412154562010-07-22T16:24:45.399-04:002010-07-22T16:24:45.399-04:00Hi Steve: Thank you for documenting your journey ...Hi Steve: Thank you for documenting your journey with MSA and experience with stem cell replacement. It was with a heavy heart that I read your last post. My husband has MSA-C and has symptoms similar to yours, maybe not as advanced. We were hoping that your experience would be more encouraging. I'm sure you are disappointed. Please don't stop posting about your experiences and your progress, or lack thereof. People are reading, even if they don't post.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6716628091774971998.post-63445604202945748162010-07-07T13:04:39.303-04:002010-07-07T13:04:39.303-04:00Hi Steve and Fran,
Thank you from the bottom of m...Hi Steve and Fran,<br /><br />Thank you from the bottom of my heart for chronicling your "Noble Experiment". My father was diagnosed with MSA last year and we've been trying to explore various treatment options for him. I heard about blog on shydrager yahoo groups yesterday and read every single post.<br /><br />First and foremost I applaud the way you both have decided to fight MSA. Your blog has given hope to countless patients and their caregivers. I must also say that your detailed account is incredible, extremely valuable and I haven't found anything like it on the web. <br /><br />My hopes and prayers are with you. <br /><br />Prashant<br /><br />P.S. - My father has been doing yoga for the past 3-4 years and he feels that it has played a positive role in his battle with MSA. I thought I might mention this to you.<br /><br />My parents live in India and they are follow Yoga teachings of Baba Ramdev -<br /> http://www.divyayoga.com/<br /><br />Baba Ramdev has a English Yoga DVD on "Parkinson's and Paralysis". I found one on ebay <br />http://cgi.ebay.com/YOGA-PARKINSON-PARALYSIS-DVD-Hindi-English-RAMDEV-/320552250732Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6716628091774971998.post-26316535246613180362010-07-01T14:29:35.474-04:002010-07-01T14:29:35.474-04:00Will you consider another treatment? What if the b...Will you consider another treatment? What if the batch you got just didn't take, or what if it worked a little but your immune system worked against the foreign cells? I wonder if there's something that would work in the future? Am rooting for you, hang in there. I appreciate you writing about your journey, what you grapple with is large and putting your story out there helps others in similar boats.spleenessnoreply@blogger.com